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	<title>About Sanfilippo syndromeAbout Sanfilippo syndrome</title>
	<atom:link href="http://www.curesf.org/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.curesf.org</link>
	<description>Visibility, recognition, understanding</description>
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		<title>A message for Sanfilippo B families from Synageva</title>
		<link>http://www.curesf.org/2012/05/a-message-for-sanfilippo-b-families-from-synageva/</link>
		<comments>http://www.curesf.org/2012/05/a-message-for-sanfilippo-b-families-from-synageva/#comments</comments>
		<pubDate>Tue, 01 May 2012 19:19:12 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[disease news]]></category>
		<category><![CDATA[education]]></category>
		<category><![CDATA[Events]]></category>
		<category><![CDATA[news wire]]></category>
		<category><![CDATA[treatment news]]></category>
		<category><![CDATA[biopharmaceuticals]]></category>
		<category><![CDATA[Ert]]></category>
		<category><![CDATA[intrathecal enzyme replacement]]></category>
		<category><![CDATA[MPS conference]]></category>
		<category><![CDATA[MPS IIIb]]></category>
		<category><![CDATA[mps society]]></category>
		<category><![CDATA[sanfilippo B]]></category>
		<category><![CDATA[sanfilippo Type B]]></category>
		<category><![CDATA[Synageva]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=8364</guid>
		<description><![CDATA[Synageva BioPharma has extended an invitation to any Sanfilippo B families to meet with Dana Martin from Synageva at the MPS meeting in Boston this year. Synageva is developing an intrathecal enzyme replacement, SBC-103, for Sanfilippo B. The program is currently listed as being in the Preclinical stage (Synageva program pipeline). Synageva will be coming &#8230; <a class="more-link" href="http://www.curesf.org/2012/05/a-message-for-sanfilippo-b-families-from-synageva/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/05/a-message-for-sanfilippo-b-families-from-synageva/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Your mission, should you choose to accept it</title>
		<link>http://www.curesf.org/2012/04/national-mps-awareness-day/</link>
		<comments>http://www.curesf.org/2012/04/national-mps-awareness-day/#comments</comments>
		<pubDate>Sun, 29 Apr 2012 12:19:40 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[Events]]></category>
		<category><![CDATA[upcoming events]]></category>
		<category><![CDATA[MPS awareness day]]></category>
		<category><![CDATA[MPS diseases]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=8329</guid>
		<description><![CDATA[Your mission:  Visibility .... recognition .... understanding.  GO BIG on MPS Awareness Day, May 15th.
 Help increase awareness of the struggles of children dealing with MPS disorders. Help ratchet up the public pressure to find answers for these children. Help the public have better understanding of what these disorders are. Help improve understanding and recognition -- among the public, among the medical community, and among lawmakers and bureaucrats.   <a class="more-link" href="http://www.curesf.org/2012/04/national-mps-awareness-day/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/04/national-mps-awareness-day/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Athersys has positive findings for its stem cell therapy for lysosomal storage diseases</title>
		<link>http://www.curesf.org/2012/04/athersys-has-positive-findings-for-its-stem-cell-therapy-for-lysosomal-storage-diseases/</link>
		<comments>http://www.curesf.org/2012/04/athersys-has-positive-findings-for-its-stem-cell-therapy-for-lysosomal-storage-diseases/#comments</comments>
		<pubDate>Sat, 21 Apr 2012 08:44:24 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[current events]]></category>
		<category><![CDATA[treatment news]]></category>
		<category><![CDATA[hurler syndrome]]></category>
		<category><![CDATA[lysosomal storage disorders]]></category>
		<category><![CDATA[MPS diseases]]></category>
		<category><![CDATA[neurological disorders]]></category>
		<category><![CDATA[stem cell transplantation]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=8293</guid>
		<description><![CDATA[CLEVELAND, April 20, 2012 (GLOBE NEWSWIRE) &#8212; Athersys, Inc. announced today the publication in the scientific journal, Cell Transplantation, of an article that describes the results of a preclinical study evaluating the administration of MultiStem® for the treatment of MPS-I (or Hurler&#8217;s Syndrome). The article, authored by investigators at the University of Minnesota together with &#8230; <a class="more-link" href="http://www.curesf.org/2012/04/athersys-has-positive-findings-for-its-stem-cell-therapy-for-lysosomal-storage-diseases/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/04/athersys-has-positive-findings-for-its-stem-cell-therapy-for-lysosomal-storage-diseases/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Adam Nelson, a RARE champion</title>
		<link>http://www.curesf.org/2012/04/adam-nelson-a-rare-champion/</link>
		<comments>http://www.curesf.org/2012/04/adam-nelson-a-rare-champion/#comments</comments>
		<pubDate>Fri, 13 Apr 2012 13:24:18 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[current events]]></category>
		<category><![CDATA[news wire]]></category>
		<category><![CDATA[adam nelson]]></category>
		<category><![CDATA[Charity Bets]]></category>
		<category><![CDATA[fundraising]]></category>
		<category><![CDATA[Global Genes]]></category>
		<category><![CDATA[Olympics]]></category>
		<category><![CDATA[RARE project]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=8152</guid>
		<description><![CDATA[Adam Nelson is a four-time Olympian in the shotput who is supporting the RARE project and awareness for Sanfilippo syndrome in his quest for his next visit to the Olympics! From Global Genes Project: We&#8217;re betting on Adam, will you? Elite shot putter and Olympian Adam Nelson will be competing in a uniform this year &#8230; <a class="more-link" href="http://www.curesf.org/2012/04/adam-nelson-a-rare-champion/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/04/adam-nelson-a-rare-champion/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Vote for me, Juno, to be American Hero Dog!</title>
		<link>http://www.curesf.org/2012/04/vote-for-me-juno-as-the-hero-dog/</link>
		<comments>http://www.curesf.org/2012/04/vote-for-me-juno-as-the-hero-dog/#comments</comments>
		<pubDate>Mon, 02 Apr 2012 19:41:09 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[current events]]></category>
		<category><![CDATA[education]]></category>
		<category><![CDATA[featured content]]></category>
		<category><![CDATA[stories]]></category>
		<category><![CDATA[american hero dog]]></category>
		<category><![CDATA[American Humane association]]></category>
		<category><![CDATA[awards]]></category>
		<category><![CDATA[Juno]]></category>
		<category><![CDATA[kill shelter]]></category>
		<category><![CDATA[Lucas Hembree]]></category>
		<category><![CDATA[service dog]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=7983</guid>
		<description><![CDATA[Here&#8217;s the link to vote for Juno for Hero Dog Click the picture of me and Lucas or HERE to go vote for me&#8211;Juno&#8211;once a day!! Hi, everyone, it&#8217;s me again. I&#8217;m Juno, Lucas Hembree&#8217;s assistance dog and best friend. I know you&#8217;ve seen me in stories and on television. I don&#8217;t want to say &#8230; <a class="more-link" href="http://www.curesf.org/2012/04/vote-for-me-juno-as-the-hero-dog/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/04/vote-for-me-juno-as-the-hero-dog/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Join us!  We&#8217;re losing weight for a great cause!</title>
		<link>http://www.curesf.org/2012/03/join-us-were-losing-weight-for-a-great-cause/</link>
		<comments>http://www.curesf.org/2012/03/join-us-were-losing-weight-for-a-great-cause/#comments</comments>
		<pubDate>Fri, 30 Mar 2012 18:53:08 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[Connections]]></category>
		<category><![CDATA[current events]]></category>
		<category><![CDATA[fundraising]]></category>
		<category><![CDATA[mission slimpossible]]></category>
		<category><![CDATA[MPS disease]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=7920</guid>
		<description><![CDATA[Do you need to lose some weight?  Do you want to support the great cause of helping children with MPS diseases, too?  If you don't know much about MPS diseases, here are some easy links to help you learn some things about it.  Sanfilippo syndrome, Hunter syndrome (MPS II) and Hurler syndrome (MPS I)  <a class="more-link" href="http://www.curesf.org/2012/03/join-us-were-losing-weight-for-a-great-cause/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/03/join-us-were-losing-weight-for-a-great-cause/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Shire snaps up CNS program from startup Heptares</title>
		<link>http://www.curesf.org/2012/03/shire-snaps-up-cns-program-from-startup-heptares/</link>
		<comments>http://www.curesf.org/2012/03/shire-snaps-up-cns-program-from-startup-heptares/#comments</comments>
		<pubDate>Wed, 28 Mar 2012 15:55:51 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[current events]]></category>
		<category><![CDATA[disease news]]></category>
		<category><![CDATA[treatment news]]></category>
		<category><![CDATA[CNS drugs]]></category>
		<category><![CDATA[Shire]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=7907</guid>
		<description><![CDATA[Heptares Grants Shire an Exclusive Worldwide Licence to Develop and Commercialise Novel Drug Candidate for CNS Disorders Heptares Therapeutics has revealed another major tie-up with a big drugmaker. A unit of Ireland-based Shire has exercised an option to grab global rights to Heptares&#8217; preclinical compound that targets a G-protein coupled receptor (GPCR) known as adenosine &#8230; <a class="more-link" href="http://www.curesf.org/2012/03/shire-snaps-up-cns-program-from-startup-heptares/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/03/shire-snaps-up-cns-program-from-startup-heptares/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Jonathan Joshua Westdijk</title>
		<link>http://www.curesf.org/2012/03/jonathon-joshua-westdijk/</link>
		<comments>http://www.curesf.org/2012/03/jonathon-joshua-westdijk/#comments</comments>
		<pubDate>Wed, 28 Mar 2012 12:56:20 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[stories]]></category>
		<category><![CDATA[videos]]></category>
		<category><![CDATA[jonathan joshua westdjik]]></category>
		<category><![CDATA[Netherlands]]></category>
		<category><![CDATA[sanfilippo child]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=7896</guid>
		<description><![CDATA[Another child with Sanfilippo syndrome has passed. Jonathan Joshua Westdijk passed away on Sunday, March 25, 2012. Jonathan lived with his family in Waddinxveen, Netherlands. He had Sanfilippo syndrome Type A. His father posted this video on youtube some time ago showing the progression of the disease. It&#8217;s very hard to watch, but important for &#8230; <a class="more-link" href="http://www.curesf.org/2012/03/jonathon-joshua-westdijk/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/03/jonathon-joshua-westdijk/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>German researchers find new way to produce brain stem cells</title>
		<link>http://www.curesf.org/2012/03/german-researchers-find-new-way-to-produce-brain-stem-cells/</link>
		<comments>http://www.curesf.org/2012/03/german-researchers-find-new-way-to-produce-brain-stem-cells/#comments</comments>
		<pubDate>Tue, 27 Mar 2012 16:59:02 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[disease news]]></category>
		<category><![CDATA[featured content]]></category>
		<category><![CDATA[treatment news]]></category>
		<category><![CDATA[brain]]></category>
		<category><![CDATA[brain cells]]></category>
		<category><![CDATA[stem cell research]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=7864</guid>
		<description><![CDATA[A new shortcut for stem cell programming Researchers at the University of Bonn artificially derive brain stem cells directly from the connective tissue of mice These stem cells can reproduce and be converted into various types of brain cells. To date, only reprogramming in brain cells that were already fully developed or which had only &#8230; <a class="more-link" href="http://www.curesf.org/2012/03/german-researchers-find-new-way-to-produce-brain-stem-cells/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/03/german-researchers-find-new-way-to-produce-brain-stem-cells/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Australian family with Sanfilippo child Jordan gets help with his care</title>
		<link>http://www.curesf.org/2012/03/australian-family-with-sanfilippo-child-jordan-gets-help-with-his-care/</link>
		<comments>http://www.curesf.org/2012/03/australian-family-with-sanfilippo-child-jordan-gets-help-with-his-care/#comments</comments>
		<pubDate>Tue, 27 Mar 2012 14:27:10 +0000</pubDate>
		<dc:creator>Elaine</dc:creator>
				<category><![CDATA[about sanfilippo syndrome]]></category>
		<category><![CDATA[stories]]></category>
		<category><![CDATA[Australia]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[jessie mei mei]]></category>
		<category><![CDATA[Jordan Connery]]></category>
		<category><![CDATA[New South Wales]]></category>
		<category><![CDATA[sanfilippo child]]></category>

		<guid isPermaLink="false">http://www.curesf.org/?p=7850</guid>
		<description><![CDATA[VANITA CONNERY is not sure if her eight-year-old son Jordan is the most challenging child in the state to manage. But the NSW government is giving $1.3 million over two years to help deal with his extreme behaviour. &#8216;It&#8217;s like winning the disability lottery,&#8217; said Ms Connery. The funding will also help two other families. &#8230; <a class="more-link" href="http://www.curesf.org/2012/03/australian-family-with-sanfilippo-child-jordan-gets-help-with-his-care/">Continue reading <span class="meta-nav">&#8594;</span></a>]]></description>
		<wfw:commentRss>http://www.curesf.org/2012/03/australian-family-with-sanfilippo-child-jordan-gets-help-with-his-care/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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