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“These common findings are indicative of a system that’s lacking in standards and oversight and is easily manipulated by folks who are not putting the interests of taxpayers and special needs kids first,’’ Auditor Suzanne M. Bump said yesterday. So says a Massachusetts state auditor about the state’s special needs education agencies. My comment: Greed and graft tick me off, especially when it comes at the expense of special needs kids. Continue reading
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This useful document was written by someone in the Graduate program in Psychology at James Madison University. It is a summary of Sanfilippo syndrome and its characteristics for their students training to be school psychologists. The first part is a good summary of what Sanfilippo syndrome is all about, and what children with the disease experience, written primarily for the person who knows nothing about the disease. The second part of the document is a discussion of the role of the school psychologist in helping Sanfilippo children, and what actions are appropriate and needed. Continue reading
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If you’re not already familiar with the site Kid Companions, you might want to check it out. It’s a site especially intended for special needs parents. The site focuses particularly on the needs of autism and on Asperger’s syndrome children, but the supplies in their store and some of their content in the blog is … Continue reading
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Here are some great images of MPS kids and their siblings going back to school. It takes courage for many kids to face the great unknown that first day–and it takes extra-special courage for MPS kids to do it. That doesn’t even mention the faith it takes for their parents to do it — sometimes … Continue reading
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Many children with Sanfilippo syndrome and other MPS disorders do not speak, or speak very little. This is apparently the primary reason why children with MPS disorders, particularly those with Sanfilippo syndrome, are sometimes misdiagnosed as being autistic early on. To avoid constant repetition of the phrase, when the following discussion says ‘children,’ assume the reference is … Continue reading