This site is built and maintained by Elaine Morrow for the sole purpose of providing a resource for information about Sanfilippo Syndrome, as well as a meeting place for Sanfilippo families.   Elaine is the grandmother of two beloved children, Aziza and Reed.  Reed was diagnosed with Sanfilippo syndrome in December, 2010. This site is dedicated to Reed and to all his fellow brave travelers along that difficult road and to their families.