The mission of this site is to inform about Sanfilippo Syndrome and the brave families who deal with it.

• First and foremost, we want to provide a place where the public can learn more about the disease and the children who have it.
• We will provide a central online meeting place for families and friends of Sanfilippo children.  We intend to be a central site for celebrating their lives  and for learning about Sanfilippo children as people.
• We will inform.   This site will attempt to make available the latest information about Sanfilippo Syndrome, particularly about ongoing research and the state of treatments and therapies for the disease.

While we support the mission of several foundations and societies involved in fundraising for support and research into Sanfilippo Syndrome, we are not formally affiliated with any.  This site will not be involved in direct fundraising, and will be maintained privately.