Hope for Nikita Concert, 4th December 2011
04-Dec-11: An amazing array of talent performed at the Hope for Nikita concert which was held in the Bracken Court Hotel in Balbriggan, Ireland, on Sunday, 4th December, 2011.
Nikita with his Dad Andrej and two sisters, Yulia and Karina
Nikita, who is 11 years old, suffers from Sanfilippo syndrome. His life is not easy, but he is very brave, and he is fighting for his life every day.Nikita loves to smile, loves his family! He also love hugs and kisses, cars and watching cartoons! Unfortunately Nikita’s disease is currently fatal. He wants to live long and need a cure!
Please pray for Nikita and the other children who suffer from this disease. You can go to www.teamsanfilippo.org and an information page on this site About Sanfilippo syndrome to learn more about Sanfilippo syndrome.
Also see these related posts:
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- Nikita with his Dad Andrej and two sisters, Yulia and Karina
Thank you for interesting event information and beautiful pictures. We pray for Nikita and all hope for the best.
My child is also MPS IIIB. Please inform me any treatment